Welcome to the Dutch ATR-X syndrome Foundation

On our website we tell more about the syndrome and about us as a foundation.
Here you can watch the video about our foundation.

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Does the syndrome also occur in females?
The syndrome occurs only in males. Females are often carriers of the gene with the ATR-X mutation (about 75%). Some children may be raised as girls because of the severe genital abnormalities.
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How do I get in touch with other families?
As a family from Holland you can sign up at the foundation and will then be invited to meetings and other activities where other families are present.
The foundation can bring you into contact with other families for example with a family that lives closest to you or who have children in the same group of age.
You can easily sign up by sending an email to: info@atrxsyndroom.nl

Furthermore there are three special ATR-x groups on Facebook:
https://www.facebook.com/pages/Stichting-ATR-x-Syndroom-Nederland/274015719329420
(this is our own public Facebook page)
https://www.facebook.com/groups/163849465337/
(this is the international ATR-X Facebook page, here families all over the world are joined and for this they must be submitted via a friendship request or by sending a personal request in English)
https://www.facebook.com/groups/515253281920518/
(this is a group for parents from Germany, Austria and Switzerland)
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How can I donate or support?
The Foundation is made possible by donations from individuals and companies. For this we are extremely grateful.

- You can donate by clicking the big button "Support us & Donate" at the top
- You can also make a donation or gift to account NL40 RABO 0159 3478 31 3478 31
on behalf of ‘Stichting ATR-X syndroom Nederland’ in Weert, The Netherlands.
- You can (co-) organize fundraising activities at your school, with friends, at work, etc. etc.
- You can contribute monthly or yearly